Lipoedema Hub is being built collaboratively, shaped by lived experience and shared knowledge from women across the community.

Many women navigating lipoedema spend hours searching for information, asking the same questions, scanning old posts, and relying on word-of-mouth recommendations that can be hard to find again later. The aim of Lipoedema Hub is to bring that practical, experience-based information together in one place, making it easier to access and easier to trust.

This is where you come in. You don’t need to have all the answers to contribute. Simply sharing what you’ve learned through your own experience can help other women find their way more easily.

Through community contributions, Lipoedema Hub is developing a set of shared directories and resources, including:

• diagnosis pathways and personal experiences of receiving a diagnosis

• therapists and practitioners women have found supportive

• community resources and support networks

• practical tools and products that have been helpful in day-to-day life

Contributions can be made anonymously, and you only need to share contact details if you choose to be kept informed.

If you’d like to share your experience, suggestions, or recommendations, you can do so using the form below. What you’ve learned, even in small ways could save another woman hours of searching, confusion, or uncertainty.

Lipoedema Hub is built through shared knowledge. Each contribution helps create something stronger, clearer, and more supportive for the whole community. You’re welcome to contribute as much or as little as feels right for you.