This page explains how Lipoedema Hub operates, how your information is handled, and how cookies are used on this site.

• Terms of Use

• Privacy Policy

• Cookie Policy

Lipoedema Hub – Terms of Use

Last updated: January 2026

These Terms of Use explain how this website may be used. By accessing or using the Lipoedema Hub website, you agree to these terms.

If you do not agree, please do not use the site.

About Lipoedema Hub

Lipoedema Hub is a UK-based, community-led platform created to support women living with lipoedema through shared knowledge, lived experience, and practical resources.

The information provided on this website is intended for general informational and community-support purposes only.

Use of information

Content on Lipoedema Hub, including community contributions, directories, and resources:

• Is not medical advice

• Should not be relied upon as a substitute for professional medical guidance

• Reflects personal experiences and opinions, which may vary widely

You are responsible for how you use any information obtained from this website. Decisions about health, treatment, or care should always be made in consultation with appropriate qualified professionals.

Community contributions

Lipoedema Hub welcomes contributions from the community. By submitting information through the website, you confirm that:

• The information is shared in good faith

• You are sharing your own experience or knowledge

• You understand contributions may be reviewed, edited, anonymised, or summarised before being included in directories or resources

• Lipoedema Hub is not obliged to publish all submissions

Lipoedema Hub reserves the right to remove or decline content that is inappropriate, misleading, promotional, or does not align with the purpose of the platform.

Directories and recommendations

Directories hosted on Lipoedema Hub may include practitioners, services, tools, or resources shared by the community.

Inclusion in a directory does not constitute endorsement or recommendation by Lipoedema Hub. Users are encouraged to carry out their own research and exercise discretion when engaging with any listed service or product.

Intellectual property

All original content on this website, including text and branding, belongs to Lipoedema Hub unless otherwise stated.

You may view, download, and print content for personal, non-commercial use only. Content must not be reproduced, distributed, or used for commercial purposes without permission.

Website availability

Lipoedema Hub aims to keep the website accessible and up to date but does not guarantee uninterrupted access or that all content will always be current or error-free.

We may update, change, or remove content at any time.

Limitation of liability  

To the fullest extent permitted by law, Lipoedema Hub accepts no liability for any loss, damage, or harm arising from the use of, or reliance on, information provided on this website.

All information is shared for general informational and community-support purposes only. Users are responsible for how they interpret and apply information obtained through Lipoedema Hub, including decisions relating to health, care, or treatment.

External links

This website may contain links to external websites. Lipoedema Hub is not responsible for the content, availability, or privacy practices of external sites.

Changes to these terms

These Terms of Use may be updated from time to time. Any changes will be reflected on this page.

Governing law

These terms are governed by the laws of England and Wales.

Contact

If you have any questions about these Terms of Use, please contact: hello@lipoedemahub.com

Lipoedema Hub – Privacy Policy

Last updated: January 2026

Lipoedema Hub is committed to protecting your privacy and handling your personal information with care and transparency. This Privacy Policy explains what information we collect, how it is used, and the choices you have.

This policy applies to the website www.lipoedemahub.com and any information submitted through it.

Who we are

Lipoedema Hub is a UK-based Community Interest Company (CIC) created to support women living with lipoedema through shared knowledge, lived experience, and practical resources.

For the purposes of data protection law, Lipoedema Hub is the data controller.

Information Commissioner’s Office (ICO) registration
Lipoedema Hub is registered with the UK Information Commissioner’s Office (ICO) as a data controller.
ICO registration number: ZC089128

What information we collect

We may collect the following information:

• Name (optional)

• Email address (optional)

• Information you choose to share via forms (e.g. experiences, recommendations, suggestions)

• Technical information such as IP address and browser type (automatically collected by our website host)

You are not required to provide your name or email address in order to contribute information to Lipoedema Hub.

How we collect information

We collect information when you:

• Submit a form on the website (via Jotform)

• Choose to sign up for updates or event information

• Contact us directly by email

At this time, we do not use Google Analytics or similar tracking tools.

How we use your information

We use the information provided to:

• Review and collate community contributions

• Develop directories and resources informed by lived experience

• Contact you with updates or event information only if you have chosen to opt in

• Respond to enquiries or messages you send to us

Information shared for directory or resource purposes may be anonymised before being used or published.

Anonymous contributions

Contributions to Lipoedema Hub can be made anonymously.
You only need to provide contact details if you choose to be kept informed or contacted by us.

Who we share your information with

We do not sell or share personal data with third parties for marketing purposes.

Your information may be processed by trusted service providers who support the operation of the website and forms, such as:

• Website hosting services

• Form processing services (e.g. Jotform)

Any individuals assisting with data collation (such as an administrator or virtual assistant) do so under our direction and confidentiality obligations.

How long we keep your information

Personal data is retained only for as long as necessary to fulfil its purpose and is reviewed periodically.
You may request deletion of your information at any time.

Your rights

Under UK data protection law, you have the right to:

• Request access to the personal data we hold about you

• Request correction or deletion of your data

• Withdraw consent where applicable

• Raise a concern about how your data is used

Children

Lipoedema Hub is not intended for children under the age of 16, and we do not knowingly collect personal data from children.

Cookies

Our website uses essential cookies required for basic functionality.
We do not currently use tracking or advertising cookies.

Further information about cookies is provided in our Cookie Policy.

Contact

If you have any questions about this Privacy Policy or how your information is handled, you can contact us at: hello@lipoedemahub.com

Lipoedema Hub – Cookie Policy

Last updated: January 2026

This Cookie Policy explains how cookies are used on the Lipoedema Hub website.

What are cookies?

Cookies are small text files that are placed on your device when you visit a website. They are commonly used to make websites work properly and to improve user experience.

How we use cookies

At this time, Lipoedema Hub uses essential cookies only. These cookies are necessary for the basic functioning of the website and its forms.

Essential cookies may be used to:

• Enable core website functionality

• Allow embedded forms to work correctly

• Maintain basic security and performance

Analytics and tracking cookies

Lipoedema Hub does not currently use analytics or tracking cookies, such as Google Analytics.

If analytics tools are introduced in the future, this Cookie Policy will be updated accordingly.

Third-party services

Some functionality on this website relies on trusted third-party services, such as embedded forms. These services may set their own essential cookies in order to function correctly.

We recommend reviewing the privacy and cookie policies of those services for further information.

Managing cookies

Most web browsers allow you to control cookies through their settings. You can choose to block or delete cookies at any time, although doing so may affect how the website functions.

Changes to this policy

This Cookie Policy may be updated from time to time to reflect changes in how the website operates.

Contact

If you have any questions about this Cookie Policy, please contact: hello@lipoedemahub.com